Page 18 - Ceufad Autumn 2022
P. 18

“THIS WAS A MENTAL       Pencelli); whatever it was we were inspired. We   ABOUT PSP PSP occurs when brain cells
                                    somehow sped up and completed the last section
            CHALLENGE AS MUCH       faster than we'd ever paddled, gaining a course   in certain parts of the brain are damaged as
                                                                            a result of a build-up of a protein called tau.
           AS ANYTHING ELSE, A      record on Strava. At the finish we were met by   Tau occurs naturally in the brain and is usually
                                    the Brecon Paddlers who provided chocolate
                                                                            broken down before it reaches high levels. In
           SIMPLE CASE OF MIND      brownies and hugs whilst mum handed out tea   people with PSP, it isn't broken down properly
                                    and bacon sandwiches.
                                      This was a mental challenge as much as
              OVER MATTER AND       anything else, a simple case of mind over matter   and forms harmful clumps in brain cells.
                                                                            Symptoms:
            IGNORING PERSONAL       and ignoring personal physical discomfort. For     » Problems with balance and mobility,
                                                                               including frequent falls
                                    dad this has been an ongoing battle for around
         PHYSICAL DISCOMFORT.       five years now. A level 4 canoe instructor and ex     » Changes in behaviour, such as irritability or
                                                                               apathy (lack of interest)
                                    member of Brecon Mountain Rescue team he is
              FOR DAD THIS HAS      now wheelchair bound, completely dependent     » Muscle stiffness
                                    on other for all his needs. If you ask him what     » An inability to control eye and eyelid
              BEEN AN ONGOING       he thinks of us completing this challenge, you’ll   movement, including focusing on specific
                                                                               objects or looking up or down at something
            BATTLE FOR AROUND       get a thumbs up and a smile that makes it all     » Slow, quiet or slurred speech
                                    worthwhile.
                                      Our supporters have donated just over £2000
              FIVE YEARS NOW.”      for this good cause and we are so very proud     » Difficulty swallowing (dysphagia)
                                                                               » Slowness of thought and some memory
                                                                               problems
                                    to have raised awareness of this debilitating   For more info visit: www.pspassociation.org.uk
                                    condition. A special word of thanks must
                                    go to the Canal and River Trust for giving us
                                    permission to complete this challenge on the
                                    waterway. Also, to the support crew, Andy and   MAKE A DONATION  through the
                                    Steve, Aimee and Dave and all our friends that   Paddle for Dave JustGiving page: www.
                                    met us on the way.                      justgiving.com/fundraising/catherine-gilbert7




         18  |   CEUFAD
   13   14   15   16   17   18   19   20   21   22   23